A newly published expert review has confirmed trial data — from a late-stage study dubbed TRANSCEND — showing that treatment with Imcivree (setmelanotide) helps promote weight loss and reduce hunger in people with…

First in a series. When people think about my life with Bardet-Biedl syndrome, what might come to mind first is my vision loss, but one of the hardest challenges I have faced has been…

A Race Against Blindness, a nonprofit dedicated to funding research into Bardet-Biedl syndrome (BBS) and other inherited conditions that cause childhood blindness, is running a fundraising raffle where participants will have the chance…