The approved therapy Imcivree (setmelanotide) can lead to life-changing relief from hunger for people with certain conditions, including acquired hypothalamic obesity (aHO) and Bardet-Biedl syndrome (BBS). That’s according to data from the…

Cruising down a mountain on skis feels so freeing. Because I have vision loss from Bardet-Biedl syndrome, all I see is a giant sheet of white. It’s a little scary, but so exhilarating. I’ve…

Watching my son Hollis struggle with severe lower back pain has been one of the hardest experiences I’ve faced as his mother. His pain continues to be one of his biggest struggles, along with weakness…